This article investigates the legal and ethical tools that should inform Canada's regulation of the privacy of genetic information. We are the first generation faced with resolving the unique challenges presented by genetic information. Unfortunately, the patchwork of instruments that could regulate genetic information in Canada is insufficient. The prospect of Canadians increasingly generating genetic information without a satisfactory structure for protecting the information is rather alarming. It is therefore important that we commit to reexamining regulations regarding genetic information. Different loci of governance will likely be required. Canada should look to international law and comparative law for inspiration regarding ethical and legal solutions for regulating the privacy of genetic information. The probable regulatory solution for Canada will rest in achieving a middle ground and conceiving of this issue as fundamentally grounded in ethics and human rights.
Stephen Orr, "Privacy of Genetic Information in Canada: A Brief Examination of the Legal and Ethical Tools That Should Frame Canada's Regulatory Response" (2004) 3: 3 CJLT